Yesterday Tumpa didi came to visit. Since Monday night, it has been both of us (Shayta and myself) together in a small ICU room rotating back and forth and keeping each other company. Mostly, our shared anxiousness doesn't help lighten the mood. I have to say that having Tumpa didi visit was such a welcome for us psychologically. It was a needed mental boost. While Tumpa didi was here, she was able to witness a couple of neurological exams and got a glance at the CT Scans and progress from the catheter.
Yesterday morning, Baba was less responsive than the previous day. He was not following commands and when he would, would do so weakly. Doctors attributed it to the seizure medication, which causes drowsiness. They also tried to increase the pressure slightly last night, which he didn't take to well, so he was also tired.
However, over the course of the day, as they reduced the propofol, Baba was beginning to wake up more and more for his exams. Around the afternoon, he opened his eyes (reflexively), he would extend his right arm upwards, almost as if he wanted to stretch. He was also feeling around his head and his eyes. Tumpa Didi and I would talk to him, and he would firmly grip my hand repeatedly-responding to us and telling us he can hear us. I think he can feel the probes and bandages or possibly pain in his head and trying to assess what happened. He is able to move his right leg and left leg (weaker than right but not inert). His right shoulder shrugs when asked to squeeze his left hand, but no movement in left hand.
As of now, neurosurgery says the drainage looks good but still a few more days before they can remove the catheter. Last night and now, he is breathing on his own for the most part (still has a respirator). With the hourly exams and needed rest, he does get agitated (pressure increases), but aside from that has remained in stable condition. No seizures since Tuesday night. Due to the increased pressure when the propofol is reduced, they are going to ease it up today to ensure his pressure is under control.
Occupations Therapy started today- just simple rotating of limbs. Physical Therapy started tonight.
Goal: Taking him off of propofol this morning and get him to wake up and get him off the breathing tube. Hopefully we see progress towards that in the next 24 hours. Eventually, transfer to Immediate Care from Intensive Care. Weeks away but moving towards it.
Shayta went back to Toronto yesterday and coming back today. I am heading back to LA today. Shayta will be here for the next week and then I'll be back.
Yesterday morning, Baba was less responsive than the previous day. He was not following commands and when he would, would do so weakly. Doctors attributed it to the seizure medication, which causes drowsiness. They also tried to increase the pressure slightly last night, which he didn't take to well, so he was also tired.
However, over the course of the day, as they reduced the propofol, Baba was beginning to wake up more and more for his exams. Around the afternoon, he opened his eyes (reflexively), he would extend his right arm upwards, almost as if he wanted to stretch. He was also feeling around his head and his eyes. Tumpa Didi and I would talk to him, and he would firmly grip my hand repeatedly-responding to us and telling us he can hear us. I think he can feel the probes and bandages or possibly pain in his head and trying to assess what happened. He is able to move his right leg and left leg (weaker than right but not inert). His right shoulder shrugs when asked to squeeze his left hand, but no movement in left hand.
As of now, neurosurgery says the drainage looks good but still a few more days before they can remove the catheter. Last night and now, he is breathing on his own for the most part (still has a respirator). With the hourly exams and needed rest, he does get agitated (pressure increases), but aside from that has remained in stable condition. No seizures since Tuesday night. Due to the increased pressure when the propofol is reduced, they are going to ease it up today to ensure his pressure is under control.
Occupations Therapy started today- just simple rotating of limbs. Physical Therapy started tonight.
Goal: Taking him off of propofol this morning and get him to wake up and get him off the breathing tube. Hopefully we see progress towards that in the next 24 hours. Eventually, transfer to Immediate Care from Intensive Care. Weeks away but moving towards it.
Shayta went back to Toronto yesterday and coming back today. I am heading back to LA today. Shayta will be here for the next week and then I'll be back.
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